![]() ![]() I hope that these lessons can help others going through challenging periods in their lives and in the lives of loved ones. I also learned several lessons that helped me get through the situation, both in the hospital and outside of it. ![]() I even learned of Rebecca's weird affinity for tapioca pudding even though she was not yet in her seventies. ![]() I learned that you need to find joy in every moment because those moments are limited. I learned that walking with a ventilator was possible even though talking was not. I tried to keep her spirits up, her body strong,and her mind focused on the prize as I slowly morphed into an overprotective mom. I cried a little, worried a lot, and laughed a surprising amount. As she fought through one battle after the next, I learned that the best thing I could do was to show up everyday and be in her corner. As her health declined, we were rejected by five consecutive transplant hospitals and were running out of options. They told methat she would never be able to breathe on her own without a double lung transplant, and then they said that she was too sick to qualify for one.ΔΆ015 began with a prognosis of days to weeks.The year brought pneumonia, aspiration, septic shock, and something called ECMO. *2018 Book of the Year Winner* On New Year's Eve 2014, thirty-seven years into her fight with Cystic Fibrosis, my wife Rebecca went into respiratory failure and was placed on a ventilator in a medically induced coma. ![]()
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